I have started the new drug called Ampyra. It may takes months to see if it works to help me or not. I'm on a 60 day trial and then hoping I can afford it if it helps.
I only have 1 more infusion left in 2 months at the Sheperd Center in Atlanta and then I will be done with HSCT. My B cells are still at zero. Not sure how long it will take them to come back after my last infusion. At least 3 months after that. I'm guess that bill because of new insurance will be about $3000 or more...just got to wait and see.
I'm now on a new sleeping pill that helps me sleep a lot better. I was having a big issue with falling asleep and staying asleep.
I still have my good and bad days. More good than I use to. I can still over do myself and heat hurts me. I'm still giving this all that I have and have hope still.
Money is tight not working but we some how make it work.